Glanzmanns Thrombasthenia
My name is Marilyn Buxton - Welcome to my Web Site
| This site is intended to give some information and advice to parents
and sufferers of Glanzmanns, a rare blood disorder. I also have a list of contacts from around the world, people who also have personal experience of the condition, and I hope we can share whatever information we have to give help and support to each other. As for me, my son David was born on the 14th May 1982. He has Glanzmann's. David is my only child from my second marrige. My only daughter, Andrea, aged 32, is not affected by Glanzmann's - nor are David's father's other two daughters (his half-sisters). It was a terrible shock to us when David was diagnosed because so little seemed to be known about it, nor did we know what to expect. We desperately needed to speak to other people about it and for four years or so we were floundering in the dark. Then one day our consultant was approached by an organisation called ' In Touch '. They had been contacted by a family in Milton Keynes, England (not too far from London) who had a daughter with the same disorder. I visited them for a few days to share my experiences regarding David. We have remained good friends ever since. This 'counselling' prompted me to form the Glanzmann's Support Group and hopefully I have been able to help just by being there at the end of a telephone, or by mail & e-mail. |
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I would like to extend my heartfelt thanks to Dr. Stevens, not just for supplying the medical info for this site, but for his care of David over the past eighteen years; he has been a tower of strength, and many a time a shoulder to cry on. Thanks is also due (to say the least) to the rest of the staff at Royal Manchester Childrens Hospital, Pendlebury, Manchester, M27 4HA - in particular, Alex Shaw, who was there from day one. Marilyn Buxton. |
| With thanks to Clive Adams of Camera Craft Ltd for sponsoring our Web Site Bessemer Drive Stevenage Herts SG1 2DL Tel: 01438 720888 Fax:01438 743551 Email: camercraftgroup@aol.com |